What
does it mean to live with multiple sclerosis? (Part 2)
It is also important to
mention the axis concerning the wider social environment, made up of his
relatives and friends as well as the surrounding environment in general. It
makes an informal social support network where a person with MS is located.
The spiritual axis is also
very important for creating the quality of life of people living with MS, as
well as the way to deal with the disease, problems and specificities of the
psychological reactions of the diseased. Elem, that would in general be the
coordinate system in which someone who lives with MS moves. Of course, we did
not list all the coordinates and determinants, as this is almost impossible,
but we tried to identify those key to make a more comprehensive and objective
overview of what is the life of people living with MS, as well as the lives of
their families.
What can we conclude
finally, taking into account everything mentioned - what is specific to the
psychological response of MS patients? From contact with the diseased, we have
come to the conclusion that it is a common determinant of all who live with MS
and what makes them specific in relation to other people, which are, for
example, Depressed, anxious, tense, having a problem in marriage, at work or
suffering from some other chronic somatic illness, is the enormous degree of
stress that MS has with itself. Chronic stress arises from the very nature of
the disease that does not have a clear cause and abounds in diagnostic
confusion in the initial phase, and with fear and confusion during illness
(variety of symptoms, drugs and their influence, access to doctors ...).
An enormous source of stress
is the unpredictability of MS, fearful of new symptoms, as well as from
tomorrow's day, and then prejudice and some sort of stigmatization that
triggers physical disability in the environment. All this requires constant
adaptation to the new circumstances.
Due to the highly individual
nature of the disease, the life that is taking place varies from person to
person. In what direction the diversity will develop depends on the
relationships that existed or exist between the aforementioned life spheres.
The family itself is
involved in the whole process of adapting to new circumstances and a new
reality that is formed due to illness of a family member. The new reality is
born from the crisis period for the whole family, and to what extent it will be
functional depends on the relationship and dynamics that existed before the
illness. In this sense, relations and roles will be developed that will be
characteristic of the "new family and person".
What is certainly a common
and extraordinary necessity of constantly listening to oneself and your needs
and possibilities. By monitoring the presence of symptoms, one can create a
present that will be in line with our being.
As an essential character,
we emphasize, once again, that the key axis about which life is formed is
health (in terms of the disease itself), but also that the interaction and
interweaving of the remaining living areas that can greatly influence the
creation of a quality and functional life must not be forgotten.
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