5
important tips when you are suffering from Multiple Sclerosis
They diagnosed MS - multiple
sclerosis. And what now? I will try to give you the advice you need to adopt to
begin to regain control of your life. Or restore the ground under your feet,
which have escaped you when the G35 diagnosis has evolved in your medical
records. In fact, the longest way is to accept one such diagnosis. And this
path is uncertain and full of curves, and different for every sick person. And
while you are listening to a neurologist who gives you basic information about
your new diagnosis, you have a million questions in your head. Let's start with
the first one that came up: Yes, everyone on the first, when they hear multiple
sclerosis, thought of a wheelchair. Incorrectly! Multipla does not necessarily
mean a wheelchair. Probably the neurologist immediately clarified the
possibilities of therapy and lengthened the list of drugs as well as ways to
relieve symptoms, but your whole life goes through your head. You have a family,
a job, a commitment .... And you will have them still. Life did not stop,
except in your head, but only right now until you swallow this information.
BE
PROACTIVE!
Do not expect that doctors
will answer all your questions on their own. No matter how much experience with
multiple neurologists, do not forget that this disease is truly different in
everyone. Become an active participant in your treatment. Use all relevant
sources to find out and learn about your illness yourself. Take care and do not
take everything you find on the Internet, and you will find everything. A lot
of useful information, but also a lot of notorious nonsense. The more
information you will be, the more complicated you will be, and you will know
what to ask and what's important to tell a neurologist who is a lifelong
associate for you. Prepare for any control, write down all the questions you
need to ask and write to yourself while the doctor is telling everything that
matters. It's not a silly idea to keep a medical diary. Write symptoms, track
your body and all the signals it sends to you, and send them a lot to multiple.
If it seems to you that your neurologist you have chosen does not understand
you, find another. It's very important to have a neurologist whom you believe
and who can tell everything. I say this because with this man, in a white coat
and a hammer in your hand, you start a friendship that will last for a lifetime
... or until they find a drug for MS.
Connect
with the sick ...
Connecting sick people will
help you to cope with the illness. Even if you are reading this blog, you have
made the first step. We need sick and we need to help each other, consult and
exchange all the information that we have individually received. Those who have
already been diagnosed have already found their ways to relieve symptoms and
this information will be very useful to you. Sometimes it's only enough to know
that you know that you are not alone in this battle. You have many groups on
social networks that bring people together. Let's connect .... It's no shame to
find strangers with the same diagnosis and ask them for advice and help. In
this way, I got quite new best friends. Life-long friends without which I can
not imagine my life today, even though I did not even know them until a year ago.
They find some comfort in helping others, so you help yourself. Try and you, do
not hide the diagnosis and pull yourself in. Be realistic, unfortunately you
can not escape this diagnosis.
...
But do not compare your MS with others
MS is an unpredictable
disease that affects everyone differently. As much as they have similarities,
we are not the same. You may have already noticed that some people with MS have
very few symptoms, while others have great problems and severe conditions. The
range of symptoms and the severity of these symptoms varies from person to
person. MS is a disease whose condition depends on scarring and brain damage.
Symptoms depend on where our lesions are and how active they are. It's also
important that you give yourself treatment, your lifestyle, whether you have
other health problems, and how old you are. All this distinguishes us from each
other and in this disease. MS is a very individual disease, so it makes no
sense to compare yourself with others and to believe in the same outcome.
Be
flexible
MS is an unpredictable
disease, do not have any doubts about it. It will surprise you for sure you can
bet it. While you are in a relapsingly remitting form (and 80% of those with
RRMS are ill), you can run a marathon for one day and you can not walk two
meters a day. You need to be flexible and ready for everything. In this
situation, it is good to have "Plan B" in each case. If you are going
to lose balance or occasionally have trouble walking, it's no shame to always
have a stick. This does not mean that you are surrendering and that you are
negative. It just means that you are practical and take control of your
illness. You do not let them surprise you. This means that you accept your
illness and continue to live your life, ready for everything that can be
brought tomorrow.
Life
did not stop. Enjoy it in the future.
Although life with MS is a
great struggle and disease is very present, you can not allow everything to get
rid of disease only. Take into account all your problems and difficulties that
the disease has brought on the other side of your strength and skills that are
still there. And take advantage of this knowledge and enjoy the activities that
make you happy. Life goes on beyond the diagnosis of multiple sclerosis. Before
you, there is still a whole life that may not be the way you imagined it, but
it is still life and you will enjoy it. It does not have to mean that if you
did not predict it, it would be less good. Perhaps after diagnosis, it will
actually become better because you will enjoy more of those little things. Just
because you have MS live your lungs and enjoy at any time. Stop worrying about
nonsense, other people's thoughts, big plans and tasks. Simply enjoy, at any
time.
Lepo!
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