Skip to main content

About Me

My name is Nicola Jojin. I’ve been living with MS since 2012. I am the person who is: very open minds, honest, provocative, imaginative, communicative… My best characteristic is that I am very positiv! With that I must point out that my life can be presented as EKG – Heart beat. There are many things to do, to see, and to experience… I am going to do everything in my power to not let my MS get in the way of doing things that I love. In hard and easy ways, I learned about this disease and want to share my experiences with you, I want to make it easier for someone to fight! But the most important thing is to understand that with MS you can live on a funny way!
My beginnings
My beginnings of MS? It’s a very difficult question to which I can not give you a clear and definite answer, but let’s take the following as my guide through the beginning of everything! I had morning routine – before work (early morning), My routine was: walked the dog by bike or on foot, breakfast, showering, coffee,  going to work… That’s how it starts almost each day, my every morning. I know some would think monotonous, but for me every day was a new trip, every day was different. So, one morning, while I was walking with a dog on our way, my feet were taken away! I could not move my legs an inch. I could move forward, and not back! Feeling: my legs were frozen! Since I was in the nature, I got down on the grass and sat down, I began to think … of course. I remember the feelings at that moment: panic, helplessness, frustration and anger. After some time, for some ten minutes, everything went back to normal, and I could re-operate! My day passed and I did not get to think about what that morning brought me. But the same thing happened to me in a very short time! 3x in one week. The mind wants to go, but the body will not! Worryingly, was not it, it was time to consult with a doctor! The path I passed with doctors for this story is not important, the important thing is the following: In March 2012, I was diagnosed with Multipla Sclerosis. That day when the doctor told me the news, the dive of the world was a wonderful thought for me! I had a positive life even before this knowledge. This has made it possible for me to quickly go through Phases of dealing with MS. It took me only a few days to understand the disease (I missed the Phase of Unbelief and Negation), and I started to think ” Now what, Sherlock” (my exclamation).
And so, my fight with MS began!


Popular posts from this blog

ALL ABOUT MS The role of the family (Part 19)

ALL ABOUT MS The role of the family (Part 19) Deform in behavior and misbehavior Very few MS patients have behavioral disorders due to the inability to control sexual impulses. This type of behavior is due to damage to the inhibitory functions of the brain. Unsuitable behavior is caused by the loss of cognitive ability due to the demyelination of significant cognitive areas in the brain. Family members should know that this is beyond the conscious control of the patient and that it is not a sign of moral weakness or sociopathic tendencies, but of illness. The treatment of the patient and the response to his behavior is very complex, and includes medication, psychiatric and neurological assistance with parallel psychotherapy. Family members need support in the form of advisory work, as this behavior can lead to unpleasant situations. Sometimes it is necessary to control these people in order to prevent possible outbursts. Whom to contact for help? For each of the emot...

ALL ABOUT MS What is multiple sclerosis (MS) (Part 1)

What is MS? Multiple sclerosis (Sclerosis multiplex, Enchephalomelitis disseminate), abbreviated MS, is an immune disease, involves axons, long nerve cell prolongations, on which some parts of the myelin coat are reacting and failing inflammation. Therefore, multiple sclerosis is considered an inflammatory, demyelinating disease caused by immunological changes of unknown aetiology. When a certain part of the myelin sheath is inflamed and damaged, the transmission of the impulse through the axon is disturbed, slowed or interrupted, resulting in messages from the brain coming to the "target" with delay, "errors" or none (absent). The disease is a very variable flow, is expressed by neurological symptoms and signs, and is characterized by frequent deterioration of varying degrees, which shifts with rapid improvement of the clinical picture (remission of the disease). The onset of multiple sclerosis is accompanied by many disorders of varying degrees, from mild st...

My FEELING, My train of THOUGHT (Part 1)

My FEELING, My train of THOUGHT Inspired by thoughts, I am created this my short text, which is engraved in my mind!   Certainly, things like this in  future time will be a lot more!  These short texts best describe our feelings, so read carefully and with .... Just READ The direction of the eye So wrong Avoiding the soul So missing I'm not asking Our existence Just asking Why am I in a war with my hands? Why am I in a war with my feet? Why am I in the war with me? And after all, I'm still going I'm not showing I do not share I do not need it What you have to give, GIVE!