LIVES
WITH MS – MS, do we accept it?
Serious and important
relationships require effort and energy, even without MS. While MS brings
additional challenges, it can also enrich relationships and bring people closer
together. The first step in discovering how to fight MS is to recognize the
fact that the disease affects everyone, whether you are ill or worried about
someone who is ill. The next step is to decide on the decision you want to talk
about your MS and what you expect a person to understand and learn about MS.
And finally, the third step is to find a place in your private and professional
relationships for the new MS without investing more effort and energy than is
necessary.
When you talk to others
about your MS, you have to consider that one size does not suit everyone. Given
that for various reasons you will discover to different people that you have
MS, your explanations should be tailored to the situation and especially to the
person. And because there are no two identical persons, do not expect the same
two reactions.
Family
members
Finding the closest ones
especially to those who know you well enough and recognizing when something is
wrong is in any case the best way to start the support you need to start the
process of confrontation.
Friends
There is no need to tell
everyone at once, start with those friends you feel most comfortable with. Over
time, you will be able to decide how much you want to share and who you want to
share with.
Employers
and colleagues
Dissemination at the
workplace can have a significant impact on your job in terms of safety,
employment and career prospects. Before discovering MS in the workplace,
inquire about your rights and carefully consider the advantages and
disadvantages of discovering personal data People you are seeing - emotional
connections.
How fast I say ... how much
should I say ... what to expect ... there are common concerns for anyone who
"somewhere" is trying to get to know someone. Although you do not
need to tell everyone at the first meeting, remember that secrets do not make a
good basis for a lasting connection, think about revealing, because you would
definitely want to know such important information about another person.
The
questions you ask yourself
Here are some important
questions you need to ask yourself when talking about your MS with other
people. Ask yourself these questions in advance and it will help you understand
which is the best way to present information to any person. It will also help
you prepare for the different types of reactions you can expect.
Why
do you want someone to know?
To share personal
information with an important person in your life? To explain recent physical
or emotional changes? To provide help and support?
What
do you want this person to understand about your MS
What is MS? How does it
affect you? How MS is variable and unpredictable? How is it treated? Is it
contagious? Is not it fatal?
What
is the best way to provide information?
Face-to-face, conversation?
Using a pamphlet that a person can take and read? Reading together a book about
MS? Looking at the online program together? By participating in an eccentric
meeting, a workshop?
What
kind of answer do you expect to receive?
Shock, silence? Tug and
tears? Fear? A lot of questions? Talk about other people with MS? Templates
What To Do? Offers for help? Hug?
Things
to think about
Shock and anxiety can make
it difficult for some people to respond, so be prepared to give them time to
process information.
You may need to provide
comfort and security just when you need the same kind of support. When people
do not know what to say, they often say nothing, so be careful not to
misinterpret it. Silence is not anxiety.
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